Caring for a child with special needs requires a lot of patience and persistence from parents and caregivers – and this is an area Papua New Guinea writer Evah Kuamin talks about in her newly published book ‘My Love – Natugu’
For Evah, the past 7 years have been challenging caring for her daughter with special needs. She didn’t know what to expect when her daughter Sarah fell ill, and hopes sharing her story can help other parents and caregivers.
Young Sarah suffers from epilepsy which is her current diagnosis. She is unable to walk, talk or move by herself and has to be helped by her mother and other caregivers.
On Saturday, she launched her book, ‘My Love – Natugu’ – which is her love story as a mother of a child with special needs.
“I’d like to share the light with other parents and caregivers to encourage them, to give them hope to continue on loving and caring for their special people in their life,” Evah explains.
Sarah has not always been a child with special needs. She was living life like an average child until she fell ill sevens years ago. She was first diagnosed with TB Meningitis, which then developed into hydrocephalus, then to cerebral palsy, and to her latest diagnosis. These are all conditions of the brain.
Evah said she didn’t know what to expect with Sarah’s condition, but it developed a special bond and has taught her to be strong.
She hopes her book My Love -Natugu can shed more light on the life of parents and caregivers, caring for children with special needs.
The copies are only sold in Lae at the moment and have sold out. Evah is ordering more copies and should put our a notice for preorders. She uses Evah Kuamin on Facebook.
